Sunday, March 27, 2016

Trial by Fire Documentary - A Charles Mattocks Production

I have decided to dedicate this page on my blog to Charles Mattocks and his work with the awesome documentary, Trial By Fire. I am extremely impressed with the kind, tender, loving, giving soul of this man towards his mom who suffers with Complex Regional Pain Syndrome, as well as towards all of those who suffer with this horrific disease!

 

AWARENESS

Charles Mattocks' work with this film is more of a movement that is bringing much needed awareness of this neurological pain disorder, changing how the world perceives chronic pain and those suffering from it!


Trial By Fire benefits all of us that live with chronic pain, even if you don't have CRPS. Educating the public about chronic pain disorders is the best way to help others understand the pandemic of chronic pain! We need to have a voice! This film is a huge voice for all of us!

 

HOPE

Not only that, it is planting seeds of hope! Hope for sufferers to be understood, as well as hope for a much needed cure! Trial By Fire is shining light into a darkness that pain shadows over the hearts of sufferers all over the world! A darkness brought on by the many losses sufferers endure, as well as being misunderstood and misjudged by others due to the invisibility of the illness, the pain, isolation and disability it brings to sufferers lives.


COMMUNITY

This light is taking away some of the isolation brought on by the lack of knowledge of others that can't understand what it is like to be trapped in a body overwrought with 24/7 chronic pain, with no hope of ever being healed! It has brought together many who live the life of chronic pain and formed a community! If you have not had the opportunity to be a part of the community, please join the Facebook page, https://www.facebook.com/trialbyfiremovie/



APPRECIATION 

Mr. Mattocks, thank you just does not seem to express the appreciation those of us feel towards the work you are doing for all of us suffering with chronic pain!

Helping to Bring Awareness of a Neurological Pain to the World

Helping to bring awareness of Trial By Fire to the world by sharing information and updates related to this film in social media is one major way we all can express our thanks and appreciation for all Charles Mattocks has done!



Charles Mattocks is the spokesperson for CRPS, however we need to stand up with him to help him as a community in order to have hope to obtain a cure for this horrid disease! Each and every one of us need to help spread the word of this amazing documentary, Trial by Fire, to educate the public and raise awareness!

 

A lot of information about Trial By Fire is being shared on Facebook, Twitter and Instagram! We need to share information we see on social media to do our part in raising awareness! Here are links to get you to this information:

Facebook at:  https://www.facebook.com/trialbyfiremovie/

The Trial By Fire Movie Website

And on Twitter at: @CMattocks1

You can read about Charles Mattocks at his personal website Charles Mattocks.


GO FUND ME 

A Go Fund Me page has been set up to support the making the film, the cost of movie festivals, as well as getting the film to the masses. https://www.gofundme.com/trialbyfire. 
PLEASE! Giving just a dollar can help! It all adds up! Please share the Go fund me page as well in social media! Remember, it takes all of us coming together to help make this a success!

The pages states:
"We want to thank all that have helped us get this far. The film is done and we are now submitting to scores of film festivals. We have been made official selections for 6 festivals in less then 3 weeks after completing the film. Our mission now is to win some awards for the film while we help market and get the word out on CRPS. Almost every film takes this same course as the film makers have to find a home or homes for the film. The festivals help gain attention for the film and bring distribution that will allow the film to be seen by millions around the world. We are still raising funds to help cover the cost of the festivals and submitting and other travel related cost to attend and promote. Now is the critical time that we can use this moment to truly get back on many major shows and promote this condition. Now is the time for print and new papers and scores of press. Once the film is out we wont be able to go back and get the word out so we are still working very hard each day to help this movement. We were just featured in Huffington Post and have many other great pieces coming on this disease. The world is now taking notice."

Trial by Fire Help Wanted-We need YOU!

April 26, 2016  

The Trial By Fire" a film based on Crps/rsd Facebook page post today stated: "Working on a release date for the film to be released online very soon. It will be streamed for 60 days and then we may work with a distribution company to make sure it gets seen worldwide. This is all not easy and takes a ton of work. Lots to do but we want to make sure the people see it and help spread the word. So once we release the date you can spread the word around the community with family and friends. Much love to all."

Also, it was posted:
We are looking for some leads or contacts. We would love to show the film in medical schools. If you know one of have a lead send our way.

Trial By Fire" a film based on Crps/rsd Facebook page posted:
Some have some good leads. I encourage to help us take the first step. You can reach out and send a name and contact. We don't have the man power to search and call. So if you have the time lets work together. Don't forget this is for all of you. It's a team effort and this could be powerful.

Recently, WFTS, ABC Action News in Tampa, Florida, an ABC affiliate, ran a segment on Charles Mattocks' documentary, "Trial by Fire," which has won two awards at the Hollywood Florida Film Festival!

View it by clicking on the link below! 

Local nephew of Reggae legend, Bob Marley, brings attention to painful condition through film

 

Then, PLEASE SHARE the link in social media to help spread the information regarding the documentary so we can help educate the public regarding Complex Regional Pain Syndrome! 




Watch this new trailer for Trial By Fire that showed up on Twitter for all to share! Trial By Fire (2016) 30 Second Trailer

 

Listen to Charles Mattocks tell about his work on his documentary, Trial By Fire about the horrid pain disease Complex Regional Pain Syndrome (CRPS)!

Share it in social media please!

 


To find out more about the movie, visit the website: http://www.trialbyfiremovie.com/

 


This was the first of many festivals the Trial By Fire film will be shown! Please click on the link to the Hollywood Florida Film Festival to obtain tickets for Thursday, February 11, 2016 at 7:15 P.M. Come on down to show the world how amazing the supor tfor CRPS is! The website states:

Huffington Post Article about Trial By Fire Movie

A great article by Huffington Post about CRPS/RSD and the  TrialbyFiremovie.com   http://m.huffpost.com/us/entry/8975800 Thanks Bryan Cain-Jackson of Huffington Post for telling this story about CRPS/RSD! The chronic a pain community need people to be aware of this disease and the horrific pain it brings! For others to have knowledge and an understanding heart towards what horrid chronic pain is like to live with, 24/7 for the rest of ones life, is huge to those who suffer!



This article will help bring awareness of this disease to the public, as well as the Trialbyfiremovie.com and Charles Mattock's relentless work! This documentary will change lives of so many by bringing knowledge where it is needed, to people's hearts. And hopefully to their minds as well, we need empathy, (not sympathy, but understanding) better treatments, as well as a cure! On behalf of all chronic pain sufferers, thank you Bryan Cain-Jackson and Charles Mattocks for bringing this to the publics attention! 

Help this effort to educate the public! Please share this with your family and friends to help spread the word about this movie! 

UPDATES ON TRIAL BY FIRE

On January 10, 2016, Director Charles Mattocks' documentary, Trial by Fire, a film based on CRPS/RSD, was added to the Hollywood Florida Film Festival! This is in addition to the Miami Independent Film Festival and the NYC INDIE Film Film Awards previously announced! On behalf of the chronic pain community, we'd like to thank all these entities for bringing awareness to the horror of the 2 million CRPS sufferers! And CONGRATULATIONS to Charles Mattocks in his relentless hard work in bringing this documentary before the public!

Per the Hollywood Film Festival Blog, it states, "Join us in the 1st Annual Hollywood Florida Film Festival which will be hosted right in the heart of Hollywood Florida. The dates are Wednesday, February 10th to Sunday, February 14th 2016."  Please click on the link provided for updates on this event!

Awareness is Needed

This movie, Trial by Fire, is helping to bring awareness to not only CRPS, but to all chronic pain sufferers as well! The chronic pain community needs to take action and show our support for this film in order to help this movement educate the general public. Please help spread the word by Tweeting the link to this film, (Trialbyfiremovie.com), sharing on Facebook to all your friends, family, as well as in your groups! 

As many of us know, the chronic pain community is vastly misunderstood! We mostly hear about the drug addiction of those using opioids and not about what we go through, the losses we suffer by having our lives shredded by chronic pain! In reality, statistics from the study by the   National Institutes of Health Pathways to Prevention Workshop: The Role of Opioids in the Treatment of Chronic Pain, released February of 2015, states that 100 million suffer from chronic pain, 25 million from moderate to severe chronic pain and of those prescribed opioids 2% become addicted. We don't often hear about the other 98%!  Or even the pain of those 2%!


UPDATES ON TRIAL BY FIRE - January 9, 2016

Trialbyfiremovie.com was selected for the MIAMI Independent Film Festival and New York City INDIE FILM, FILM AWARDS. It was posted on Facebook that, "They may have had over 3 or so thousand submissions. They only pick a hand full and we made the cut. Wow, is all I can say. More to come!" http://www.nycindiefilmawards.com/noveselection.html

THE PRESTIGIOUS AWARDS COMPETITION IN NEW YORK CITY


























The NYC Indie Film Awards are a monthly online awards competition based in the center of the most exciting city on this planet, and is a platform for Independent Filmmakers from all over the world to show their talents!

 

You can hear about the films next steps as well as listen to a "Recap of the making of Trial by Fire, the film based on CRPS/RSD" with Charles Mattocks at the following link: http://www.blogtalkradio.com/mytruth/2016/01/02/recap-of-the-making-of-trial-by-fire-the-film-based-on-crpsrsd

FOR MORE UPDATES: Visit the links below on Facebook, Twitter and the Trial by Fire website. For all of you that are on Twitter and Facebook, please follow Charles, tweet about the movie and encourage others to retweet the tweets as well that other are tweeting. And on Facebook, share the posts to help join the movement to get the word out on this documentary to increase awareness!


Please watch for updates on Facebook at:  https://www.facebook.com/trialbyfiremovie/

The Trial By Fire Movie Website

And on Twitter at: @CMattocks1

Trial by Fire Documentary - A Charles Mattocks Production

The other day I was playing around on Twitter trying to figure it out, getting lost in the endless maze of tweets, retweets, #news tweets, tweets from #chronicpain, tweets from @medical places, @NIH and @people I met recently. As I was trying to read all the articles and comments that were posted, I mean ‘tweeted”, I spent 15 minutes reading, which somehow turned into 50 minutes, I still don't know much more about how it all works as I did when I logged in! Sigh! With all this computer stuff I have been trying to learn, along with all the social media places, my incompetency level is still at an all time high! Maybe I should go back to trying to figure out the TV remote!

So, in all this wondering around on Twitter I got a tweet from someone about something that had been tweeted and now retweeted back to me! I was reading it and trying to figure out the beginning of the topic in relation to the end, who exactly the people were and how did I even get involved in this tweet in the first place!

Anyways, I was tweeted, or retweeted by some Charles Mattocks guy. I didn't know who he was so I clicked on his profile and seen he was a celebrity chef! OK, I thought to myself, I like this!  I used to be into attempting to re-create many recipes off the food shows. My dream was to have my own show demonstrating people trying to recreate what they seen cooked on TV and failing miserably at achieving the cherished end result, just like I do! I thought a little humor brought into cooking would be great fun! That was in my other life. My life before chronic pain took over my cooking abilities of chopping, cutting, stirring, mixing and all the physical abilities it takes to put together an awesome creation!

So this is the fabulous new Twitter friend I made!

Charles Mattocks

@CMattocks1

Celebrity chef, #diabetes advocate, film maker Seen on #CNN, Dr Oz, The Today Show, Anderson Cooper.Best selling author wrapping a DOC on diabetes& #RSD


After reading his Twitter profile I decided to explore his website. I found out that not only does he have type 2 diabetes and is a diabetes advocate, he is a caretaker for his mom with CRPS/RSD as well! OK, I like this guy even more! Helping his mom out like that is a very compassionate act for sure! This guy had my attention at celebrity chef and caretaker! THEN it got even better! He is an advocate for CRPS and has a movie soon to be released, Trial by Fire, to help educated people on this horrid disease! If I could, I'd give this extremely compassionate, empathetic man and devoted son a ginormous hug I would!

I then started reading more about this Charles Mattocks, (my new friend and he doesn't even know it!) LOL! He is the nephew to Bob Marley! The Reggae legend! "Get up, Stand up don't give up the fight!" The guy with dreadlocks! We have yet another connection! Relatives with dreadlocks. My grandson rocks dreadlocks! Oh, and the gkid had a shaved head before that! LOL! Yep! Charles and I are kindred spirits! (It’s the cooking, care-giving, chronic pain, faith and related to someone with dreadlocks connection!)

This man does not need me to be his PR person, obviously he is doing just fine on his own. But being that I have been working on starting a couple new sections on my blog, one about chronic pain news and another for educational videos on chronic pain, his work fits both these new areas! So I want to share about this man, Charles Mattocks, and what he is doing with his new documentary on CRPS, Trial by Fire, which by the way, helps all of us living with horrid chronic pain! We need all the help we can get to educate the public (NIH Report on chronic pain) about these horrific neurological diseases that are literally hell to live with and causes so many to lose so much! Statisics of chronic

So, I asked him if I could share his movie in my blog! See! He answered me! How awesome is that!

Chronic Pain Living@sherikay823 Dec 7
@CMattocks1 @marjmlksatx being excited about movie I want to do a blurb on my blog.Can I use info that is public?who u r, link to movie,etc?

Charles Mattocks@CMattocks1 Dec 7
@sherikay823 @marjmlksatx yes you can, thanks a ton

And to think I am a newbie at Twitter! By the way, you can follow me @sherikay823!

After reading a plethora of information on all this man has achieved I had a hard time trying to figure out how to break it all down into one blog post. So I decided to focus on the film and why he wanted to become an advocate for CRPS/RSD.

According to Mr. Mattocks' website this is the backstory to the documentary "Trial by Fire":
 
“TRIAL BY FIRE" SHORT DOCUMENTARY
Charles’ mother, who is also the sister of the late Reggae legend Bob Marley, was diagnosed with CRPS/RSD years ago and he has seen the pain and the mismanagement of the condition first hand. Charles, who also lost his father in November, 2014, was moved to try and get his mother the needed help and also bring awareness to the condition that has brought pain to the lives of almost two million people around the world. RSD/CRPS is a condition that needs much attention and he saw a need and wanted to contribute to getting that need filled. Charles has talked and heard scores of stories and researched the condition and his heart was moved to get involved and become an advocate for the condition through the love of his mother."

Trial by Fire Trailer, A Film Based on CRPS/RSD by Charles Mattocks Productions

I then found a very insightful and heartwarming interview with him at the Caregiving Café! I encourage you to read this whole interview, for there is much more! You can find the full interview at this link http://www.caregivingcafe.com/blog/tag/charles-mattocks/

I want to just add this part for you to read!
"What do you hope to tell medical professionals, the world & family caregivers through your film, and especially about CRPS?
I am hoping medical professionals will tell us something; I am hoping they will allow me to understand, and by me understanding, then those who see the film will also get the picture. I want to know why there is not more funding, why insurance companies don’t pay for the care, why this condition isn’t more well known, why does it seem like some are just trials for doctors to test new gadgets and tricks on. I am wondering why so many people go without being given the right diagnosis. So I am looking for the same answers that most are, I’m hoping that we understand what helps and what to stay away from. Hoping to encourage those who see no hope that there are groups and people to support them, and just praying that the film can inspire and bring the community closer together."

You can read more about this remarkably, awe inspiring man and all the wonderful work he is doing for diabetes, as well as find all the links to the radio shows, TV shows and news shows he has been on, at his personal website http://www.charlesmattocks.com

Charles Mattocks, on behalf of all chronic pain sufferers I would like to thank you for all you are doing to advocate for us! May God bless you and all you are endeavoring to do! And may God bless your Mom as well!

 


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This blog is for all of us with chronic pain! Do you have a favorite topic on chronic pain, documentary, book or video you'd like me to cover in this blog? I'd love to hear about it! Share in the comments below.


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34 comments:

  1. When and Where can we view this movie? I live with CPS and would love to see this and use it to help spread the message to my loved ones who try to understand, but sometimes think it might just be "me."

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    1. I was told the first screening is in Tampa, Florida between January 12-15, 2016. They will know the final details within a week or so of other screenings. It would be very helpful for others to have an understanding of what this horrible disease is like to live with. It is so hard for many to understand.

      I will let you know when I get more details!

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    2. I live in Tampa Florida. I haven't heard of any screening dates, times, or places. ..Please post! I have CRPS and I'll be there.

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    3. I live in Tampa Florida. I haven't heard of a screening here. Please! Part the dates, times and places. Thanks I have CRPS and I'll be there!

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    4. I have Arnold Chiari Malformation and developed CPRS from my decompression and spinal surgery. I live in St Louis and will love to see this movie.

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    5. Please keep an eye on the Trial by Fire Facebook page, as well as here for updates on showings.

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  2. Thank you for caring, sharing & educating!

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  3. Thank you for saying that! All any of us can do is what we are physically able to do to help others out on this same journey! Even giving words of encouragement to others is major to those needing it! I'm thankful Charles Mattocks is able to do this documentary to help educate the public of this horrid disease!

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    1. Yes, we need to work together to make a positive difference! 🙏🏻

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  4. How can my family expect to understand my invisible illness. I feel like a quivering wreck about to crumble like an unstable Jenga tower. Education of medical personnel is the first priority. I am currently weaning myself off wheat, sugar and processed food. On Cymbalta, Magnesium and Omega 3 Supplements which are dulling my nerve pain.I exercise by walking and practicing Pilates.

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  5. How can my family expect to understand my invisible illness. I feel like a quivering wreck about to crumble like an unstable Jenga tower. Education of medical personnel is the first priority. I am currently weaning myself off wheat, sugar and processed food. On Cymbalta, Magnesium and Omega 3 Supplements which are dulling my nerve pain.I exercise by walking and practicing Pilates.

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    1. It is very hard for others to understand what they can't see. We need that, especially from those close to us, as well as our health care teams. So glad you are being proactive in self care! I did find Magnesium helpful with a. Lot of the "electronically shock" feeling.

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  6. I can't wait until the movie is out. I was diagnosed with CRPS/RSD about a year ago,I have had four sympathetic nerve blocks currently in physical therapy and on pain meds...some days I walk fine other days I use a cane, walker or crutches.... I have found that I am slowly becoming a shell of a person losing all of who and what I used to be. I cry enough tears to fill a river and have begun my retreat in this little corner of my world. I'm scared, lonely and desperate to feel anything besides pain.It was only a sprain and a minor fracture a year ago but has turned into a life changing nightmare and it won't let me awaken.

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    1. Oh boy do I understand I'm in bed 90% of the time and no life. But I don't want to take narcotics. I don't know what to do. Its been 5 yes since a simple fall.

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    2. Very sorry about your fall and the resulting CRPS that has left you in bed so much. It is a hard life for sure! May you find a health care team that can provide something that can help even a little!

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    3. Jami, it is very hard to grieve our losses indeed. If you read through the articles in this blog you will see many you may find helpful. With more to come as I am able. Know you are not alone. I hope you can find a support group to help you on this journey, if you haven't already. That is truly one of the many things what we need so we aren't alone.

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  7. May you find peace in knowing that you are living in a time of great research & development by Pharm. Co's & Doctors. I am in my 3rd decade. Still waiting for help. It can always be worse & others are here to help & pass on experiences.

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    1. Stephen, Thirty years is a long time indeed! Yes, we need to be here for others on this journey! It takes all of us to lend a hand to those at different stages! May research find a cure sooner than later!

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  8. I live with RSD and a bit of Fibro for the last 10 years. I have this chronic pain in my left side and every now and again my right leg attacks me with the pain which feels like it's in the bone. To make people understand this condition would be the most wonderful thing.

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    1. Vicki, thanks for sharing with us! That pain that goes through the bone is unbearable! May you be blessed with understanding people in you life!

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  9. I also have CRPS after a botched foot surgery that then needed reconstruction and bone grafting. I can no longer walk and lost my job last month. I also have Ehlers Danlos hypermobility type, narcolepsy with cateplexy, Interstitial cystitis, and fibromyalgia. All invisible, all painful. I would be so happy to see this film get out so others can understand this pain.

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    1. Mary, Sorry to hear you suffer from this as well! And sorry you have had lost the ability to walk...and your job, as well as dealing with all the additional diseases! Too much for anyone for sure! Understanding is all many of us desire! Simply to be understood!

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  10. I was diagnosed with RSD in 1999. I am on my 3rd pain pump, my 2nd stimulator and have learned to live with the pain in my legs & feet. I would love to know when this will be showing in my area. (Ft. Worth, TX)

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  11. I was diagnosed with RSD in 1999. I am on my 3rd pain pump, my 2nd stimulator and have learned to live with the pain in my legs & feet. I would love to know when this will be showing in my area. (Ft. Worth, TX)

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    1. Robin, Thank you for visiting this blog and thank you for sharing part of your story! I know there's a lot between the lines left unsaid. That is a lot to deal with for so long! Keep an eye open on here and on the Trial by Fire Facebook page for updates!

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  12. My mother has CRPS/RSD in her right arm and oh my god it is the worst pain ever. I hate to see her in so much pain. I really hope a cure is developed real soon. I just can't take watching her suffer any more. Praying 4 a cure.

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    1. Devon, what a treasure your mom has in a caring son as you are! It is hard to see the look in my hubby's eyes when I have a worse day than usual and aren't able to deal well with the pain. It hurts our loved ones for sure and leaves them feeling helpless.Thank you for praying for a cure! Prayers for your mom as well!

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  13. I was diagnosed with CRPS after THREE knee replacements on the same knee within a 14 month period. When the pain kept getting worse and after spending 4 weeks in the hospital with IV antibiotics for what could have been an infection, it was thought better to go to pain management to treat CRPS instead of hoping for a cure. After the 3Rd surgery, I ended up with an 18" implant and artificial knee. The pain never goes away and there is no quality of life. I knew nothing about RSD/CRPS and neither did my surgeons. My new pain management doctor seem to know something about it and we decided to use opioids to manage it. Over the past 3 years, I have seen myself slowly dwindling away as I become a bad reflection of my former self. I wish I could get better and my supporters keep telling me that it will get better soon, however I know better as it keeps getting worse. My medical team seem to be getting more knowledgeable and is beginning to treat me with more respect than before. Since so little is known about CRPS,we are treated almost as drug users looking for a high and it's all in our heads. However, that seem to be slowly changing awareness grows. I would love to see others get the same treatment and respect that I get from my pain doctor. Thank you for making this film and I look forward to seeing it someday. It will certainly contribute a great deal to spreading awareness of this debilitating progressive journey into hell. Maybe a lot of folks will benefit from a cure someday, long after I have gone. Thanks again.

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  14. I was diagnosed with CRPS after THREE knee replacements on the same knee within a 14 month period. When the pain kept getting worse and after spending 4 weeks in the hospital with IV antibiotics for what could have been an infection, it was thought better to go to pain management to treat CRPS instead of hoping for a cure. After the 3Rd surgery, I ended up with an 18" implant and artificial knee. The pain never goes away and there is no quality of life. I knew nothing about RSD/CRPS and neither did my surgeons. My new pain management doctor seem to know something about it and we decided to use opioids to manage it. Over the past 3 years, I have seen myself slowly dwindling away as I become a bad reflection of my former self. I wish I could get better and my supporters keep telling me that it will get better soon, however I know better as it keeps getting worse. My medical team seem to be getting more knowledgeable and is beginning to treat me with more respect than before. Since so little is known about CRPS,we are treated almost as drug users looking for a high and it's all in our heads. However, that seem to be slowly changing awareness grows. I would love to see others get the same treatment and respect that I get from my pain doctor. Thank you for making this film and I look forward to seeing it someday. It will certainly contribute a great deal to spreading awareness of this debilitating progressive journey into hell. Maybe a lot of folks will benefit from a cure someday, long after I have gone. Thanks again.

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    1. Ed, Thank you for sharing your story. That is definitely a lot of surgeries to have in a 14 month period! Pain like that is life changing and you describe it so well for all of us when you said, "I have seen myself slowly dwindling away as I become a bad reflection of my former self." It is a sad reality when we realize this isn't going away and then to be treated as drug abusers is just a slap in the face when we are already struggling to deal with what shreds of life we are left with! We are all hoping this film will bring awareness to this horrific disease and lead to a cure some day, sooner than later! We have to have hope! Charles Mattocks has truly done a great job bringing this film about for all of us suffering, including his mom!

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  15. Thank for sharing your painful journey. I too actually considered and failed at a suicide attempt after a botched double cervical fusion implant surgery in Feb 2012 - after just 1 week, the surgeon would not provide any pain meds and the main in my neck shoulder back and arms just took my breath away. I started to have severe leg and foot pain. Today I suffer from neuropathy and fibromyalgia and take high doses of Lyrica and Percocet. I have celiac so my diet is gluten free. I have gained about 70#s since my surgery due to Lyrica and not being as active.'im proactively trying to work with My dr to get off of Lyrica using Methadone. My sons choose not to have me in their life because I cannot be normal. The social isolation is maddening!

    God Bless you for the raising public awareness. Hopefully it will kick ass with insurance companies, medical professionals and politicians as to what chronic pain sufferers life is like and do something to help us!

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    1. Thank you for sharing your story. It is a tragedy you were treated so horrendously by your surgeon that led to such an event! I am very sorry for you having to suffer the additional pain from the loss of relationships with your sons. That is truly heartbreaking! God bless you as well in your journey and yes, may we all get the help we need!

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  16. Does anyone here have any experience with the use of CBD (cannabidiol) for CRPS?

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    1. Hello, There are many that have tried CBD in various forms for CRPS, as well as other types of chronic pain. There are many groups on FB that have discussions on this. Just be sure that you discuss anything you take with your physician, don't buy something that is not reputable, and know that everyone's body is different. What one person finds helpful, another may not. Blessings to you!

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As always, please feel free to leave a comment, ask questions, or give suggestions!